On the 20th March the Trust held their AGM to discuss the objectives for 2016.
The main topic of conversation was centred around how the money raised is to be spent. The charity was originally set up as it was Joseph’s personal wishes to provide gifts and financial support to children and their immediate families in times of need.
We were also looking at getting the ‘butterfly bus’ on the road to provide respite services to families. This matter was discussed at the AGM at great length and it has been decided that at this moment we are not in a position to facilitate this, and we have decided to revert back to Joseph’s wishes and look to proactively spend some of the funds this year directly with the families in need.
Not only are we looking at providing the children with personal items eg lap tops, ipads etc but in addition offering help to respective families with financial support which could include unexpected bills, additional travelling costs etc. These are sometimes things that we all take for granted but for families trying to cope with a sick child and all the upset that this entails it can add additional stress and worry.
The Committee would like to thank everyone who has supported us so far and we are continuing with our fund raising over the coming year.
If anyone has any ideas or would like to get involved then please contact us.