Joseph was diagnosed in January 2008 with Lymphoma and had 2 years of treatment until January 2010 when he was placed in remission and enjoyed most of 2010 until Boxing Day when he started to feel unwell.
He was taken back to the Queens Medical Centre in Nottingham where, after undergoing various tests, was diagnosed with Leukaemia and required a bone marrow transplant.
His transplant was done at the Sheffield Children’s Hospital in July 2011 and was quite successful in beating the Leukaemia, unfortunately Joseph suffered with various viruses which are known to follow bone marrow transplants and he fought courageously to overcome all of them.
In June 2013 after battling both Lymphoma and Leukaemia and putting up a tremendous fight Joseph passed away.
Initially Joseph's Father Mark and I set up the charity the ‘Joseph Cooper Trust’ to raise funds for individuals needing financial help during treatment and to be able to fund the odd trip to either the pantomime, theatre, football/rugby match, as this was Joseph's wishes when he was alive.
Our first year was extremely successful and we managed to raise just under £25K which was amazing.
We had great plans for 2015 and Mark's main focus was to raise enough funds to provide a wheel chair friendly vehicle which we could use to transport children to Rainbows Hospice in Loughborough for respite breaks, day trips and occasionally help families get to hospital for treatment when they had no transport available. This would be called the "Butterfly Bus" and Mark was extremely passionate about this and it was his dream for the charity.
Unfortunately in January 2015 I lost Mark to cancer. He too, like Joseph had battled for many years and was an incredible person who I shared my life with for 24 years.
My life will never be the same and my only choice now is to continue with our plans and get the "Butterfly Bus" on the road.
There are a number of fund raising activities taking place in and around the East Midlands throughout the year so please keep an eye on the events page and your support would be most welcome. In addition if you want to organise an event yourselves then please get in touch and I will offer any help and support you may need.
Thank you and best regards,